VISION IMPAIRMENT IN CHILDREN AND THE IMPACT ON CHILDREN AND THEIR FAMILIES
With
Dr Susan Silveira
Chief Investigator
Australian Childhood Vision Impairment Register, NextSense &
Program Director
Master of Disability Studies (Macquarie University),
NextSense, Sydney, Australia
RESEARCHER PROFILE
Filmed in Sydney | June 2025
Sue is a qualified paediatric orthoptist who has held both clinical and academic roles. She has a Master of Health Sciences (Education) from the University of Sydney, and a PhD from the University of Newcastle.
Sue holds a conjoint academic position with Macquarie University and is the Course Director for their Master of Disability Studies, which is administered and delivered by NextSense Institute in affiliation with the University. She teaches in the areas of vision impairment and disability, and aims to share her knowledge while learning from others, especially people who are blind or have low vision and their families.
A research fellow with NextSense Institute, Sue is the chief investigator on a collaborative partnership project that established the Australian Childhood Vision Impairment Register, which captures data to help improve services for children who are blind or have low vision. She is also a co-investigator on a project that aims to raise awareness about when and why braille should be introduced in a child’s life, and is working as part of a research team developing accessible playgrounds.
Sue has worked extensively in the NSW public hospital system and in vision screening programs, and has held an academic position with the University of Sydney’s School of Orthoptics, in addition to working at The Children’s Hospital at Westmead—the largest paediatric centre in NSW.
Through her research, Sue aims to give a voice to people who are blind or have low vision, and to broadly improve their quality of life.
Outside of work, she prioritises her family and tries to spend time on her loved pastime–drawing.
Source: Supplied
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Pathogenicity, modelling & treatment of inherited retinal Stargardt disease
Dr Di Huang is a Research Associate at the Lions Eye Institute (LEI), working with A/Professor Fred Chen and Dr Sam McLenachan. Her research focuses on developing a robust platform of retinal pigment epithelium cells and retinal organoids derived from patient-specific induced pluripotent stem cells to model inherited retinal diseases, particularly Stargardt disease (STGD1).
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Environmental exposure to function of lung epithelial stem cell biology
Dr Clare Weeden has recently commenced as a Laboratory Head at WEHI in 2025, supported by the CSL Centenary Fellowship.
Dr Weeden specialises in lung epithelial cell biology in the context of homeostasis, inflammation, and lung cancer, particularly in people who don’t smoke. Her work endeavours to understand how past environmental exposures shape the responses of lung cells and the molecular mechanisms underlying this cellular recall, with the aim to develop novel early detection strategies for lung disease.
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Dr Dinesh Palipana
RESEARCH IN SPINAL CORD INJURY
@ GRIFFITH UNIVERSITY, QUEENSLAND, AUSTRALIA
