FORUM FOSTERS DIALOGUE BETWEEN BREAST CANCER LIVED EXPERIENCE ADVOCATES, RESEARCHERS AND CLINICIANS Organised by the University of Queensland and Translational Research Institute
In October 2024, the Frazier Institute hosted an event dedicated to breast cancer advocacy and research, supported by TRI (Translational Research Institute), National Breast Cancer Foundation, PA Research Foundation, Health Translation Queensland, QUT and The University of Queensland Faculty of Medicine/Frazer Institute.
The key aim of the event co-organised by Associate Professor Joy Wolfram, Group Leader, Australian Institute for Bioengineering and Nanotechnology & School of Chemical Engineering, The University of Queensland was to foster dialogue between breast cancer lived experience advocates (consumers), researchers, and clinicians.
Co-organiser Associate Professor Fernando Guimaraes, Group Leader, Principal Research Fellow, Frazer Institute, The University of Queensland spoke to Australian Health Journal about the need to host the event and regularly engage with consumers.
Jo Maxwell, Principal Project Officer, Consumer and Community Involvement in Research Strategy and Support at The University of Queensland also spoke about the standards for consumer participation and collaboration adopted from the International Association for Public Participation (IAP2).
“IAP2 guides the researcher to structure consumer involvement all through the different stages of their research”, says Maxwell.
Associate Professor Cleola Anderiesz, Chief Executive Officer National Breast Cancer Foundation presented at the Forum and spoke to Australian Health Journal on the impact of engagement when communities, researchers and clinicians come together to hear about the latest research and discuss a future of better breast cancer care and outcomes.
The day long event was enlightening and impactful. The forum in Brisbane included a workshop focused on creating international connections between breast cancer consumers in Australia and the United States, with insights from leading breast cancer oncologists, clinicians, consumers, researchers, and community.
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HIGHLIGHTS The power of social determinants of health, panel discussion
Clinicians and consumers know only too well that life circumstances such as poor housing, income and food insecurity can have a negative impact on health outcomes. Conversely, participation in community activities, social connection and access to nature parks and leisure facilities can help maintain health and wellbeing.
More recent phenomena in public health have also focused us on the health and social care connection. Stress factors such as the sudden loss of employment and social interaction, moving to remote work or schooling, and the impacts of sudden, localised COVID-19 ‘lockdowns’ to prevent further outbreaks were triggers of increased psychological distress.
And loneliness is being described as our latest epidemic with chronic loneliness inked to a myriad of health problems and earlier death. A recent report found one in four Australians say they feel persistently lonely, and that loneliness costs $2.7 bn a year in health costs alone.
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The desire for primary care nurses to do more, be recognised and valued for the work they do
Denise Lyons is a highly experienced nurse with over 40 years in the profession, including more than 25 years dedicated to primary care. She earned her Bachelor of Science in Nursing in the United States in 1985 and, in 2012, became an endorsed Nurse Practitioner in Australia. Currently, she serves as a primary care Nurse Practitioner in General Practice in Newcastle, where she is committed to delivering high-quality, patient-centred care that improves the health and wellbeing of her community.
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Rapid trend shift in radiology technology and accessibility
Dr Mansoor Parker obtained his medical degree from the University of Tasmania. He then completed his specialist radiology training at Nepean Hospital, Sydney with subspecialty interests in Interventional Radiology and Pain Management, Musculoskeletal, Cardiac and Abdominal Imaging. Dr Parker is a qualified specialist since 2005 and is a member of the Royal Australian and New Zealand College of Radiologists and the exclusive Australasian Musculoskeletal Imaging Group (AMSIG) as well as the Interventional Radiology Society of Australasia (IRSA).
