FORUM FOSTERS DIALOGUE BETWEEN BREAST CANCER LIVED EXPERIENCE ADVOCATES, RESEARCHERS AND CLINICIANS Organised by the University of Queensland and Translational Research Institute
In October 2024, the Frazier Institute hosted an event dedicated to breast cancer advocacy and research, supported by TRI (Translational Research Institute), National Breast Cancer Foundation, PA Research Foundation, Health Translation Queensland, QUT and The University of Queensland Faculty of Medicine/Frazer Institute.
The key aim of the event co-organised by Associate Professor Joy Wolfram, Group Leader, Australian Institute for Bioengineering and Nanotechnology & School of Chemical Engineering, The University of Queensland was to foster dialogue between breast cancer lived experience advocates (consumers), researchers, and clinicians.
Co-organiser Associate Professor Fernando Guimaraes, Group Leader, Principal Research Fellow, Frazer Institute, The University of Queensland spoke to Australian Health Journal about the need to host the event and regularly engage with consumers.
Jo Maxwell, Principal Project Officer, Consumer and Community Involvement in Research Strategy and Support at The University of Queensland also spoke about the standards for consumer participation and collaboration adopted from the International Association for Public Participation (IAP2).
“IAP2 guides the researcher to structure consumer involvement all through the different stages of their research”, says Maxwell.
Associate Professor Cleola Anderiesz, Chief Executive Officer National Breast Cancer Foundation presented at the Forum and spoke to Australian Health Journal on the impact of engagement when communities, researchers and clinicians come together to hear about the latest research and discuss a future of better breast cancer care and outcomes.
The day long event was enlightening and impactful. The forum in Brisbane included a workshop focused on creating international connections between breast cancer consumers in Australia and the United States, with insights from leading breast cancer oncologists, clinicians, consumers, researchers, and community.
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Patient family develops app for improved adherence and clinical outcomes
Darron Goralsky, a physiotherapist with over 30 years of experience, is the Clinical Director and Founder of Melbourne TMJ and Facial Pain Centre. He leads a multidisciplinary team dedicated to treating jaw pain, facial pain, and headaches. Goralsky has observed a rise in musculoskeletal issues among younger populations, largely due to increased screen time and poor posture, trends that intensified during the COVID-19 pandemic. Emphasising technology integration and patient responsibility, he believes digital health solutions play a crucial role in improving adherence and outcomes for both patients and caregivers.
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Expansion of specialist training in regional & rural areas
Associate Professor Sanjay Jeganathan, Chair of the Council of Presidents of Medical Colleges (CPMC) states, ”Our rural and regional communities deserve the same access to specialist care as our cities. We’re seeing real results from our colleges’ commitment to rural training.”
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Enriching experiences in nursing mentorship
Mentoring in nursing is crucial for the development of nurses and the advancement of the nursing profession. It provides a supportive environment for personal and professional growth, knowledge transfer, and leadership development.
Australian Health Journal met with two nurses both working in Queensland, one the mentor, the other, the mentee. Both get to appreciate the experiences mentorship gives them.
